Influencer’s Daughter Elliana Rose Dies at 10 Months Old: ‘I’m Heartbroken, and I’m Angry’

• On Tuesday, April 8, influencer Hannah Campbell posted a TikTok to announce that her daughter, Elliana Rose, died the night before.
• The 10-month-old infant had junctional epidermolysis bullosa (JEB), a rare condition that causes the skin to be extremely fragile and quick to blister.
• Campbell has chronicled her late daughter’s journey with the disease since September 2024. She’s spent over six months educating her following of over 700,000 about JEB.

Influencer Hannah Campbell shared the news that her 10-month-old daughter, Elliana Rose, died on Monday, April 7.

“In loving memory of Ellie,” Campbell wrote alongside a video posted to her TikTok. “She passed peacefully past night, wrapped in love.”

Elliana had junctional epidermolysis bullosa (JEB), a rare condition that causes fragile, blistering skin. “Blisters may appear in response to minor injury, even from heat rubbing or scratching,” according to Mayo Clinic. Blisters may form inside the body, such as the lining of the mouth or stomach, in severe cases.

In the caption of her announcement post, Campbell continued to grieve her late infant. “I don’t know what to do with myself today. I’m heartbroken, and I’m angry. No child should have to endure what she did,” she wrote. “EB stole her from us. Let’s fight for a cure so no other family has to feel this. Thank you for loving her with us.”

It is inherited and usually appears in infants or young adults, per the Mayo Clinic. It has no cure, but less severe cases may improve with age. Treatment includes caring for blisters and preventing new ones from forming.

Junctional epidermolysis bullosa is one of the most severe types of epidermolysis bullosa. Campbell created a post that broke down the differences between types, though made known that JEB “is brutal” no matter the type.

“Severe JEB often takes lives way too soon, and even the ‘milder’ form still causes daily pain, wounds and lifelong challenges,” she wrote. “There is no cure, but there is hope. Every child with EB deserves a future without pain. Spreading awareness leads to research, treatments and one day a cure.”

Campbell has chronicled her daughter’s journey of life with junctional epidermolysis bullosa on her TikTok, sharing videos of her little one’s day-to-day while also educating over 700,000 followers about the rare condition.

In Elliana’s case, Campbell shared that her care involved “constant wound care, special medical supplies and adaptive equipment to keep her comfortable and safe.”

Nebulizer treatments, offering her small amounts of liquids frequently, humidifiers, electrolytes, alternating Tylenol and Ibuprofen, and Pedialyte in a syringe were just a few of the methods Campbell shared to help support her daughter.

Campbell would also document her family’s adventures, including her husband Jacob and their other daughter, Ember, sharing their road trips and travels outside to soak in their special moments with Elliana.

“Making every moment an adventure, knowing each one is a gift,” Campbell captioned a video of their trip to a snowy lake in February. “Filling her world with as much adventure as we can, for as long as we can,” she wrote over the clip.

On March 31, Campbell shared an update on Elliana and said they were “holding our girl close” in the caption of the TikTok video, which saw their little one drinking her bottle with her eyes closed.

“Ellie’s body is slowing down, and we’re staying by her side, giving her all our love. Thank you for being part of her journey and holding us in your hearts,” she wrote over the clip.

Campbell has voiced her appreciation for the community she’s created on her social media, often thanking them for their continued support of Elliana and her family amid their journey.

Outside of TikTok, Campbell started “Elliana’s Hope for Healing,” a fundraiser organized with the intent of providing support to their daughter and other babies facing similar health conditions. Their goal is to cure EB by 2030 and pioneer a path for the 400M battling the rare disease.